believe

It has been over 3 weeks since Lucy has been home. It has been amazing. She is the sweetest baby. I am overwhelmed with how well she is doing here at home. She is thriving. She is very alert and has started to really cry, which Mike and I are enjoying. I feel so full of hope and love when I look at Lucy. I know our family is complete. The other day we were driving over to my dads home and I looked in the back of the car and saw all 4 of my children happy. It filled my heart. I just can't stop thinking about how much my mom would have been over the moon in love with Lucy. She always had a soft spot for her grandchildren, but there is something so special about her. I'm sure it's because she is truly a miracle. She has changed not only our lives but so many others. I am still touched by the amount of kindness that is coming our way. Whether it's a beautiful blanket hand made by my parents neighbor, or packages in the mail for Lucy or pictures taken by a truly talented friend, I can't find the words to say thank you in a way that I feel is adequate. One day I hope I can pay it forward all the kind things that others have done for our family. I just hope that Lucy's story has touched people, a least one person, in a way that has helped them believe in prayer, believe in God. Because she has me believing again after all my faith was lost.


morning sister snuggle

home

After waiting patiently for 88 days Lucy is home!! I put this video together as a reminder to us and to anyone who watches this, that prayer and medicine work miracles. Share and Enjoy! Music by IZ "Somewhere over the rainbow"

lessons

So today Lucy was supposed to come home. We were all so excited. I called everyone, even asked my friend who takes amazing photos if she could come and take pictures of us leaving the NICU. Then Thursday Lucy decided she wasn't ready and started having apnea like crazy. They ended up putting her back on the cannula and stopped her feedings. Immediately I thought she was getting sick again. To say I was freaking out is an understatement. Luckily Lucy had an amazing nurse who let her rest and started feeding her again slowly and gave her some medication for some swelling she had. You see since Lucy was supposed to leave on Monday they wanted her to have her 2 month immunizations. I was hesitant from the start. I asked a million questions if it was safe for her to have the shots being she is so small and her immune system seems to be weaker than a "normal" 2 month old. They all assured me she would be ok. Well turns out she wasn't. She had a terrible reaction to the shots. It was another scary 48 hours, but we have all come out of the darkness again and she is better than ever. They are now talking again about discharging her but I am keeping my lips sealed as to when that will be. I have learned my lesson about trying to plan and control each situation. I am focusing on today. We had a fantastic day today. I was able to give Lucy a bath, feed her 2 bottles and she did great. Not one sound out of the monitor. Tomorrow might be different but I can't control that. Living for the moment is something I have never been good at, I am always worried about tomorrow or what the plan is for the future. But I am trying and today I was successful and I had a really good day!